PILOT INTERVENTION

Trans Wellness,
Trans Brilliance

Peer-led • Virtual • Skill-building • Group

Backstory

Trans Wellness/Trans Brilliance is the culmination of a body of work from 2015 when we first investigated coping skills and community resilience in the cross-sectional survey Finding Our Strength (2016). Influenced by the minority stress theory, Finding Our Strength explored the anticipation of discrimination of transgender and gender diverse adults, such as felt stigma and heightened vigilance. We explored these experiences across healthcare, academic, work, and home settings. We also examined coping responses and community strengths.

Driven by our belief in applied research, i.e., translating findings into tangible benefits for our community, Finding Our Strength influenced a range of provider/ally trainings, peer support services, and continued research.

We were unsatisfied with merely learning about community coping. We wanted to affect even greater change by building a program that would bring members of the trans/gender diverse community together, to learn, explore, practice, and discuss different behavioral health strategies to improve emotional wellness and thriving. We sought to ensure the accessibility of such a program so that members across the state of Michigan may participate in and benefit from the program.

With support from researchers at the University of Michigan School of Social Work, we led the design, development, implementation, and evaluation of a community-based wellness program, Trans Wellness/Trans Brilliance, piloted in the spring of 2023. Learn more about the program and its development below.

Minority Stress

We applied the Minority Stress Theory in 2015 to the transgender and gender diverse community through Finding Our Strength. At the time, it had only been applied to sexual minorities.

Passive Coping

Predominantly relying upon passive coping skills (i.e., avoids, ignores, or resigns to stress) related to greater depression risk, greater loneliness, poorer self-reported health, and greater severity of anxiety. 

Finding Our Strength

A Burden of Discrimination

We adapted the Heightened Vigilance Scale (Williams, 1997) in Finding Our Strength to the unique needs of the transgender, nonbinary, and gender diverse community. The prevalence of stress stemming from worry about / anticipation of discrimination was concerning. Higher scores on the Heightened Vigilance scale related to increased severity of anxiety, depression risk, and lower self-reported health.

Finding Our Strength

Pilot Program to Change Outcomes

Trans Wellness/Trans Brilliance was developed in response to these earlier findings. We were determined to affect greater change than merely documenting disparities within our community, but building a program to facilitate growth, resilience, and thriving. 

Project aims

As a community-led and informed multi-study initiative, we sought to develop an eight-week wellness program for transgender and gender diverse Michiganders that was virtually available and peer-led. The program aimed to support participants in honing skills for well-being, emotional wellness, resilience, and thriving while increasing connections with the community. 

Objectives for Participants:

  • Offer a safe space to process and build skills in a group setting (co-learning) 
  • Teach participants how to recognize and respond to their feelings
  • Provide participants with the skills to deepen their practice of mindfulness, body awareness, embodiment, and presence
  • Unpack gender norms and reclaim our unique experiences as transgender, nonbinary, gender non-conforming (gender diverse) people, celebrating gender, identity, and expression
  • Promote skills that are transferrable to different aspects of their lives, such as interpersonal relationships, dating, a sense of self-confidence, and self-concept
  • Improve mental health, wellness, and resilience
  • Increase self-efficacy and self-compassion
  • Improve stress tolerance and bodily awareness
  • Decrease feelings of isolation and foster community connections 

Objectives for Peer Support Specialists: 

  • Develop peer facilitation skills within the trans/gender diverse community 
  • Increase empowerment 
  • Obtain feedback on the pilot from adjunct provider vantage points  

Significance

Trans Wellness/Trans Brilliance was the first program of its kind in the state of Michigan. It underscores community ingenuity in devising solutions to the challenges we face. As calls have been made for research to extend beyond merely documenting health disparities and, instead, implementing psychosocial interventions which affect positive change (Mustanski & Macapagal, 2023), Trans Wellness/Trans Brilliance heeds this call.

Trans Wellness/Trans Brilliance solves for an array of needs:

  • Understanding that the mental health challenges stem from the stigmatization of trans/gender diverse individuals, Trans Wellness/Trans Brilliance was developed to build skills and counter these experiences, fostering resilience.
  • Further, trans/gender diverse individuals may delay seeking care, for reasons of affordability, lacking insurance coverage, not believing care would be effective, not expecting providers to understand TGD needs, the lack of affirming and available providers, or not trusting mental health providers(^21).
  • Researchers call to gaps in adapting interventions (e.g., mindfulness-based) to be culturally responsive to the trans/gender diverse population (^22). As a comnunity-led and -developed program, it is built around the needs and experiences of members of the trans/gender diverse community. 

Peer-led

Peer support:

  • increases community connectedness 
  • instills validation
  • exemplifies the possibilities for gender embodiment 
  • models skills in ways that increase motivation
  • decreases feelings of isolation and stigma

Virtual

In 2017, Transcend implemented telehealth services to overcome barriers. The virtual modality of Trans Wellness/Trans Brilliance intends to do the same and overcome:

  • lack of transportation,
  • lack of nearby services
  • accessibility barriers (chronic illness, disability, mental health drains) 
  • anxieties about meeting in person
  • offers the convenience of virtual services

 

Skill-Groups

Many support groups exist that are discussion-based, unstructured, and focused on support. Trans Wellness/Trans Brilliance filled a gap by introducing a:

  • skill-building format
  • a space to co-learn with others in the community
  • learn, explore, practice, and discuss skills and personal modifications to skills
  • venue to enhance emotional wellness, resilience, and thriving

Methods

Review of the Literature

We began by conducting a literature review of virtual, peer- and group-based interventions to improve mental health measures. Our literature review identified duration, format, and other potential characteristics to consider while developing TWTB intervention.

Study 1: Qualitative Interviews with Community Stakeholders to Develop the Intervention

We consulted with five trans/gender diverse individuals who also provide support to members of our trans/gender diverse community. Given the dual role of support provider and peer, we felt this was an important perspective. Recruitment took place through partner networks, listservs, and reaching out to LGBTQ community centers. We gained insights from a mental health clinician, a leader of support/youth programs, community organizers, a grassroots wellness worker (informal), and a workshop facilitator for creative, emotional processing, and gender exploration. Through our semi-structured discussions, we examined community strengths, weaknesses, existing programs, gaps in existing support services, proposed objectives for such a wellness program, target skills to improve emotional wellness and resilience, and recommendations for program content, exercises, and resources to provide participants. We also assessed the key characteristics of peer support specialists for eventual recruitment purposes. All interviews were conducted over Zoom (BAM, SKK), between 60 and 90 minutes long, and took place during 2020 and 2021. Interviews were transcribed and analyzed independently for key themes before meeting to build consensus and agreement.

Program Development

We collated these findings into program objectives and an eight-week curriculum. We organized topics into a narrative arc. We incorporated resources and exercises recommended in the community consultants’ interviews. We researched additional exercises to produce a complete program that encompassed personal values, mindfulness, emotion/sensations, coping ahead, navigating interpersonal relationships, navigating the world around us, distress tolerance skills, and topics exploring gender identity and expression. We consulted with our advisory team, which consists of a trans/gender diverse peer counselor and accessibility advisor, as well as a licensed clinical social worker with extensive experience providing trauma-informed care to trans/gender diverse clients.

Study 2: Qualitative Focus Group Session to Assess and Validate the Proposed Intervention

We recruited six trans/gender diverse Michiganders from across the state, spanning various age groups, genders, expressions, races/ethnicities, socioeconomic and disability statuses. The virtual focus group was held on Zoom, 90 minutes long, and incorporated features such as polling, directed and voluntary chat responses, and open discussion to increase avenues for fuller participation. Participants were guided through discussions that examined the TWTB program objectives, individual session format, weekly topics, and sample exercises. Participants provided feedback that validated the desirability of such a program and provided recommendations on recruitment strategies. We obtained beneficial feedback, which we incorporated into further refinement of TWTB.

Study 3: The Uncontrolled Pre- and Post-test Intervention

In preparation for the pilot, we recruited over 170+ applicants across Michigan via email listservs, social media posts, and social media advertisements. We invited 32 individuals to join four cohorts of eight participants each. All participants received informed consent by email, which included program limitations (i.e., not clinical care or therapy; not a substitute for clinical care or therapy), followed up by a phone screen with a member of the research team (CM, BAM) to confirm participant eligibility, review informed consent together, identify availability, and assess their ability to join the video call in a private location. Participants completed a baseline measure before the program and a post-test survey upon completion of the pilot. Weekly debrief surveys were provided to participants to measure skill exposure and obtain timely feedback on exercises and activities. Sessions were 90 to 120 minutes long, held weekly for eight weeks over Zoom, and led by two facilitators, a Peer Support Specialist, and a mental health clinician for backup support.

A timeline with the title: Designed for trans/gender diverse folks by trans/gendere diverse folks. 
The timeline reads left to right: 
Literature Review, or reviewing studies involving virtual programs advancing health. Stakeholder interviews (n=5) to Understand which topics would be most relevant to cover in a virtual peer support setting. Draft, or use information from interviews and existing research to draft an eight-week intervention. Focus Groups, collect feedback on intervention objectives and structure (n=8). Revise, or edit and revise intervention outline based on feedback. Pilot, or pilot intervention with trans/gender diverse Michiganders (n=23). Literture Review, Draft, and Revise stages are represented with a circle in blue outline, reflecting tasks that were done based on community feedback and research. Stakeholder interviews, Focus Group, and Pilot are reflected in coral outlined circles, representating stages of direct community involvment and feedback.
A copy of the social media recruitment advertisement with the following image description: [ID: coral pinkish background of a horizon and blue-ish gray overlooking mountainous hillsides. foreground has fog in an orange/peach-ish coloring, rolling through the valleys. The text reads Trans Wellness Trans Brilliance (adjacent to Transcend and U-M logos). "Participate in a new program. Peer-led, virtual groups that meet for 8 weeks." Parallel lines are above and below the text: Emotional wellness, resilience, mindfulness, and self-compassion. Build skills with our trans/gender diverse community. A graphic outline of a hand pointing upward, with cross-connecting circles above and aside (5 total). The piece reads: By us, for us. Includes U-M IRB approval and HUM#00209504.]
An image of the state of Michigan, with all of the counties mapped out. Counties are shaded to reflect where Trans Wellness, Trans Brilliance applicants were located, and included: In the upper penninsula - Houghton, Marquette, Chippewa; in Northern Michigan - Emmet, Grand Traverse, Wexforn; in the remaining areas of Michigan - Bay, Saginaw, Gratiot, Genesee, Lapeer, St. Clair, Macomb, Oakland, Livingston, Washtenaw, Wayne, Lenawee, Kalamazoo, Ottawa, Kent, Ionia, Montcalm, Mecosta.

Community-led research

“Community-engaged research” is a broadly used phrase and takes many forms. However, the researchers seldom define it in sufficient detail. In the case of Trans Wellness/Trans Brilliance, our initiative exceeded mere community engagement and was community-led. 

Community Defined
  • The leader of a grassroots trans-led organization, who is a non-academic community-based researcher, developed the work plan and study design for the multi-phase initiative that resulted in Trans Wellness/Trans Brilliance.
  • A peer support specialist of the trans-led organization provided advisory support for both accessibility and from a peer-support perspective.
  • All researchers involved are trans/nonbinary, including an academic researcher/associate professor and a doctoral candidate from the University of Michigan.
  • The intervention is based on consultations with TGD individuals who hold roles providing support to the TGD community (e.g., a mental health clinician, community organizer, leader of TGD support/youth programs, and informal/grassroots peer support worker)
  • The intervention was evaluated and validated by TGD individuals who might participate in such a program, ranging across gender, race, age, disability, veteran status, and geographic location across Michigan,
Conceptualization
  • The impetus for this peer-led wellness program originated with Transcend the Binary, a trans-led wellness and research organization.
  • Specifically, Brayden A. Misiolek (they/he), who developed Transcend’s first peer-support program and led an investigation into community coping skills (Finding Our Strength), was interested in scaling one-on-one support while offering a structure for peer learning in a virtual, group setting.
  • Dr. Shanna Kattari, a nonbinary researcher and faculty member with the University of Michigan’s School of Social Work, supported this initiative and subsequent grant.
Leadership &
Decision-Making
  • Misiolek and Dr. Kattari were Co-Principal Investigators for developing Trans Wellness/Trans Brilliance and its three composite studies.
  • Cecil McGhee (they/them), a trans/nonbinary doctoral candidate at the University of Michigan Gender & Feminist Psychology program, provided project leadership acted as Program Manager.
  • Decisions were generally made by consensus, following the parameters set by the scope of the acquired grant.
Methodology/Methods
  • The methodology was influenced by McGhee, who introduced critical theory and intersectional framework from an epistemological standpoint.
  • Misiolek influenced the methodology by adopting a community-led approach to program and research development, which was informed by Transcend the Binary’s grounding philosophies of community empowerment and the guidelines developed by the Trans Research Health Advisory Board (LINK).
Input/Validation
  • The multi-phase study included multiple community validation checkpoints, including initial qualitative interviews with community stakeholders, focus group testing for program validation, and advisory consultation throughout the project lifecycle.
Analysis/Interpretation
  • The doctoral candidate led the analysis, which was interpreted by the full trans/nonbinary team, including the peer support advisor.
Visualization/Reporting
  • A nonbinary graphic designer created all graphics for recruitment and community dissemination.
Funding Acquisition
  • Misiolek researched the funder and authored the concept paper, seeking preliminary feedback from the funder. They also developed the multi-phase work plan for the proposal and supported the grant application.
  • Dr. Kattari developed the program budget and led the grant proposal process.

 

What we learned

Brayden Misiolek and Cecil McGhee presented the preliminary findings of Trans Wellness/Trans Brilliance via a webinar.

Several manuscripts are in development. 

Check back for updates or email brayden@transcendthebinary.org

A special thank you to the Michigan Health Endowment Fund for supporting trans-led ingenuity and community-designed solutions. 

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